通过公众参与治理:对人类基因组编辑的预测方法
Dorit Barlevy1, Eric Juengst2, Jeffrey Kahn3
1Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX 77030, United States.
Science & public policy
|July 22, 2024
概括
这项研究提出了人类基因组编辑 (HGE) 的主动治理框架. 它结合了公共价值观,以指导这种强大的技术的伦理发展和负责任的应用.
科学领域:
- 生物医学伦理 生物医学伦理
- 遗传学 遗传学 是一个
- 公共政策 公共政策
背景情况:
- 在2018年何建奎丑闻之后,加强了对人类基因组编辑 (HGE) 治理的公众参与呼吁.
- 这起丑闻涉及转基因人类胚胎的植入,突出了伦理和监管方面的差距.
研究的目的:
- 开发HGE的预测性治理方法.
- 确定公众对HGE应用的价值观,希望和担忧.
- 提出与公共价值观一致的治理建议.
主要方法:
- 征求多学科专家对HGE驱动因素和不确定性的意见.
- 开发了HGE发展的可信的未来场景.
- 汇集专家,提出基于公共价值观的治理建议.
主要成果:
- 确定了与HGE相关的关键公共价值观,希望和担忧.
- 为HGE提出了一系列治理建议.
- 建议强调公众参与,国际协调和举报人保护.
结论:
- 预测和参与的方法对于管理HGE至关重要.
- 对于负责任的HGE来说,国际协调和透明度至关重要.
- 将公共价值观纳入治理框架,可以确保HGE技术的伦理进步.
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