一个伦理框架,为过渡到一个操作学习医疗保健系统的伦理框架
Marieke J Hollestelle1, Rieke van der Graaf1, Miriam Cjm Sturkenboom2
1Department of Bioethics and Health Humanities Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University Utrecht The Netherlands.
Learning health systems
|July 22, 2024
概括
本研究提出了一个伦理框架,以指导学习医疗保健系统 (LHS) 过渡到运营实体. 它强调公共利益,公平,利益相关者参与,以及成功实施的可持续性.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 生物伦理学生物伦理学
- 卫生系统科学 卫生系统科学
背景情况:
- 学习医疗保健系统 (LHSs) 正在引起人们的注意,但很少有运行.
- 对于项目来说,有一个道德上的要求,即向运营性的LHS过渡.
- 本文讨论了LHS项目过渡的伦理考虑.
研究的目的:
- 为过渡到运营性学习医疗保健系统 (LHSs) 的项目制定伦理框架.
- 确定和阐述LHS实施的总体伦理要求.
- 通过将框架应用于 ConcePTION 项目来提供上下文.
主要方法:
- 对LHS,数据密集型健康研究和卫生系统创新的既定伦理框架的分析.
- 识别跨框架的重叠的伦理要求和共同价值观.
- 在特定的LHS项目中应用衍生的伦理要求 (ConcePTION).
主要成果:
- 确定了四个主要的伦理要求:公益/危害/益处比,公平/正义,利益相关方参与和可持续性.
- 这些要求对于成功过渡到运行的LHS至关重要.
- 该框架应用于ConcePTION项目,重点关注怀孕和哺乳期药物安全性.
结论:
- 拟议的伦理框架为过渡到运营LHS提供了指导.
- 虽然该框架是为怀孕和哺乳期量身定制的,但适用于各种各样的医疗保健领域.
- 成功实施LHS需要遵守道德原则,以最大限度地提高公共利益并确保公平.
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