为癌症中心开发采集区数据仪表板:一种利益相关者参与的方法
medRxiv : the preprint server for health sciences
|July 23, 2024
概括
开发一个由利益相关者驱动的数据仪表板有效地传达癌症流域数据,增强预防和护理. 这种以用户为中心的方法确保该工具对不同受众来说是可以理解和可操作的.
科学领域:
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
- 癌症研究 癌症研究
背景情况:
- 有效的数据仪表板对于传达复杂的癌症流域数据,改变预防,护理和社区参与至关重要.
- 在整个数据仪表板开发过程中,让利益相关者参与进来是最大限度地以用户为中心并确保相关性的关键.
研究的目的:
- 概述一个系统的,利益相关者驱动的,基于理论的方法来创建针对癌症中心量身定制的流域数据可视化工具.
- 通过用户友好的数据可视化来加强癌症中心的外展和社区参与.
主要方法:
- 利用OPT-In (组织,计划,测试,整合) 框架来设计,开发和测试一个原型数据可视化工具.
- 通过形成性评估收集多学科专家和利益相关者的反,以完善数据元素和视觉设计.
- 采用混合方法方法来评估该工具的可理解性和可操作性,并纳入对改进的定性反.
主要成果:
- 开发了一个仪表板,可视化癌症发病率,死亡率,风险因素,医疗保健准入和特定流域健康的社会决定因素.
- 取得的可理解性和可操作性得分超过了80%的门,利益相关者证实了该工具在教育和宣传方面的有效性.
- 确定了需要改进的关键领域,包括更温暖的色调板,数据源透明度和高级分析功能.
结论:
- 一种系统的,由利益相关者驱动的方法产生了一个数据资源,满足并超过可理解性和可操作性的基准.
- 开发的仪表板是沟通癌症数据和支持宣传工作的宝贵资源.
- 未来的步骤包括建立宣传道和社区伙伴关系,以促进改善癌症结果的政策和计划.
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