开发一个调查问卷来评估临床医生和患者报告的行为性角质炎的结果:专家小组的结果
Brian Berman1, April Armstrong2, Mark Lebwohl3
1University of Miami Miller School of Medicine, Miami, Florida.
JAAD international
|July 23, 2024
概括
一个新的调查问卷,即特定于行动性角质炎的专家小组调查问卷 (AK-EPQ),捕捉了患者和临床医生对行动性角质炎 (AK) 治疗有效性和满意度的见解. 该工具增强了对AK治疗研究中的患者体验的理解.
科学领域:
- 皮肤病学 皮肤病学
- 患者报告的结果
- 临床研究 临床研究
背景情况:
- 目前的行动性角质炎 (AK) 局部治疗评估缺乏从患者和临床医生的角度对安全性,有效性和满意度的全面评估.
- 这种差距凸显出对专门措施的未满足需求,这些措施可以充分捕捉AK治疗中的患者经验.
研究的目的:
- 开发一种新型的特定于行动性角病的专家小组问卷 (AK-EPQ).
- AK-EPQ旨在评估AK的患者报告结果 (PRO) 和临床医生报告结果 (CRO),特别是用于研究环境.
主要方法:
- 召开了一个由具有AK治疗专业知识的9名皮肤科医生组成的共识小组.
- 该AK-EPQ是使用患者访谈和有针对性的文献评论来开发的.
- 该小组在AK-EPQ的11个项目上达成共识.
主要成果:
- 开发的AK-EPQ包括11个项目,评估患者和临床医生的治疗相关局部皮肤反应的观点.
- 它还涵盖了AK的临床和化品结果以及治疗满意度.
- 该AK-EPQ将最初在患者报告的行动性角质炎研究结果 (NCT05260073) 中实施.
结论:
- 新开发的AK-EPQ为患者和临床医生的AK治疗经验提供了宝贵的见解.
- 对这些双重观点的比较分析可以帮助优化AK治疗的精准医学方法.
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