角对生活质量的影响:一种定性研究
Leo Fan1,2, Himal Kandel1,2, Stephanie L Watson3,4
1Faculty of Medicine and Health, The University of Sydney, Save Sight Institute, Sydney, NSW, Australia.
Eye (London, England)
|July 23, 2024
概括
尽管正在进行治疗,但形显著影响各种领域的生活质量 (QoL),包括驾驶,职业和医疗保健. 需要进一步的疗法来改善角患者的QoL.
科学领域:
- 眼科医生 眼科 眼科
- 生活质量研究 研究 生命质量研究
- 患者报告的结果
背景情况:
- 角膜是一种影响角膜形状的渐进性眼睛疾病.
- 生活质量 (QoL) 是慢性疾病患者福祉的一个关键方面.
- 了解肌病影响的特定的QoL领域对于全面的患者护理至关重要.
研究的目的:
- 识别和探索被诊断患有角病的个体所影响的生活质量 (QoL) 的特定领域.
主要方法:
- 半结构化的深度访谈对33名角患者进行了深度访谈.
- 使用归纳和演过程进行主题分析,应用于采访成绩单.
- 数据收集继续进行,直到达到主题和.
主要成果:
- 七大主题出现了:驾驶,职业,症状,享受,关系,财务和医疗保健.
- 在角质和这些QoL域之间观察到主要是负面的关系.
- 患者报告了诸如治疗丧,恐惧进展,隐形眼镜不便,职业影响,财务压力和社会隔离等问题.
结论:
- 角严重损害患者的生活质量,影响多个生活领域.
- 目前的治疗方法并不能完全减轻与角相关的QoL负担.
- 对于能够有效地改善皮患者的QoL的疗法,存在着显著的未满足需求.
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