让它起作用:丹麦多重慢性疾病的日常生活和医疗保健
Anna Louise Skovgaard1,2,3, Tine Tjørnhøj-Thomsen4, Marianne Johansson Jørgensen1
1Department of Research, Horsens Regional Hospital, Horsens, Denmark.
Medical anthropology
|July 24, 2024
概括
患有多种慢性病的生活带来了相当大的治疗负担. 了解患者的体验和医疗保健互动对于改善多病症患者的护理至关重要.
科学领域:
- 医疗保健研究的研究.
- 医学社会学 医学社会学
- 患者为中心的护理
背景情况:
- 人们越来越担心与多病症相关的"治疗负担".
- 需要更好地了解医疗保健对多种疾病患者的影响.
研究的目的:
- 探索多病症个体如何导航他们的疾病轨迹.
- 研究"价值观"在多种疾病患者的医疗体验中的作用.
- 分析医疗保健关系中主体位置的创造.
主要方法:
- 丹麦多病症患者的民族学实地研究.
- 借鉴最近在医疗保健中对"价值观"的理论化.
- 在疾病管理中分析"尝试"和"只是继续下去".
主要成果:
- 多病性疾病的疾病轨迹的特点是持续的"尝试"和"只是继续下去".
- 医疗保健的关系和遭遇塑造了患者可用的主体位置.
- 患者的经验突出了管理多种疾病的实际和价值方面.
结论:
- 医疗保健实践应承认和支持多病症患者的"尝试"和适应性策略.
- 了解患者价值观对于有效的医疗保健体验至关重要.
- 认识到医疗保健如何塑造患者的主体地位,可以导致更加以患者为中心的方法.
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