唐氏综合症成年人中自闭症:患病率,医疗补助使用情况和并发疾病
Eric Rubenstein1, Mack Toth2, Salina Tewolde2
1Department of Epidemiology, Boston University School of Public Health, Boston, MA, USA. erubens@bu.edu.
Journal of autism and developmental disorders
|July 24, 2024
概括
患有唐氏综合征和自闭症的成年人承担更高的医疗费用和服务使用. 这种人群也经历了某些慢性疾病的流行率增加,需要改善预防性护理和治疗.
科学领域:
- 医学研究 医学研究
- 公共卫生 公共卫生
- 医疗服务研究 医疗服务研究
背景情况:
- 自闭症和唐氏综合征是不同的神经发育状况.
- 自闭症和唐氏综合征的同时出现给医疗保健带来了独特的挑战.
- 对这一群体来说,了解服务利用和健康结果至关重要.
研究的目的:
- 检查成年医疗补助计划注册人群中自闭症和唐氏综合征同时发生的患病率.
- 为了比较单独患有自闭症,单独患有唐氏综合征和两种疾病的个体之间的医疗保健服务使用,成本和慢性疾病.
- 为制定有针对性的医疗保健策略和干预措施提供信息.
主要方法:
- 从2011-2019年对医疗补助申请和遭遇的回顾性分析.
- 使用ICD-9/10代码识别患有自闭症和/或唐氏综合征的成年人 (18岁以上).
- 医疗保健成本,索赔,住院,长期护理日和特定群体的慢性疾病的比较.
主要成果:
- 在2011年至2019年期间,519,450名成年医疗补助计划入学者满足了以下标准:自闭症 (396,426),唐氏综合征 (116,422) 或两者 (6,602).
- 唐氏综合征患者中同时出现自闭症的患病率在2011年至2019年间从4.1%增加到6.6%.
- 与孤独症组相比,唐氏综合征+自闭症组的医疗保健利用率,成本以及心房动,痴呆症,心力衰竭,病和肥胖等疾病的患病率较高.
结论:
- 自闭症在患有唐氏综合征的人群中比一般人群中更为普遍.
- 同时出现的自闭症和唐氏综合征与显著增加的医疗保健需求和成本有关.
- 对于患有这两种疾病的人来说,急需加强预防性护理,量身定制的治疗方法和有效的医疗管理.
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