自闭症患者对父母诊断的看法 披露:一个有根据的理论研究
Nitsan Almog1, Einat Haya Keren2, Tamir Gabai2
1Disability Studies Program, Department of Education and Societal Studies, Ono Academic College, Kiryat Ono, Israel. nitsan.al@ono.ac.il.
Journal of autism and developmental disorders
|July 24, 2024
概括
自闭症成年人发现,父母对自闭症诊断的披露是验证和自我理解的关键. 他们建议早期,逐步披露,重点关注个体特征和积极的框架来支持孩子.
科学领域:
- 神经发育障碍 神经发育障碍
- 心理学 心理学 心理学
- 社会科学 社会科学 社会科学
背景情况:
- 父母披露自闭症诊断对孩子的生活和自我认同产生重大影响.
- 早期诊断与改善生活质量有关,但父母的披露做法尚未得到充分研究.
研究的目的:
- 探索自闭症成年人关于父母披露他们自闭症诊断的观点.
- 为有效的家长披露策略制定自闭症驱动的建议.
主要方法:
- 基础理论和解放性的研究范式.
- 数据收集自85名自闭症成年人在焦点小组和41人在个人访谈中.
- 参与者分享了学习他们诊断的经验,并为家长提供了建议.
主要成果:
- 参与者认为诊断披露是验证,减少羞耻感,增强自我理解和宣传.
- 关键建议包括早期和逐步披露,根据孩子的能力量身定制.
- 建议专注于自闭症的个体表现,并以积极的方式呈现,强调优势和同行联系.
结论:
- 父母对自闭症诊断的披露是一个持续的循环过程.
- 这项研究提供了一个有效沟通和诊断后父母支持的模型.
- 自闭症成年人的见解对于开发支持性披露实践至关重要.
相关概念视频
01:19Autism Spectrum Disorder
79
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
79
01:26Modeling in Therapy
61
Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
61
03:34Theory of Romantic Attachment in Adulthood
43.4K
Attachment is a long-standing connection or bond with others. While Attachment Theory was conceived in developmental psychology to describe infant-caregiver bonding, it's been extended into adulthood to include romantic relationships.
43.4K
01:35Pedigree Analysis
84.2K
Overview
84.2K
01:27Parenting Styles
64
Diana Baumrind's four parenting styles — authoritarian, authoritative, neglectful, and permissive — each influence children's socio-emotional development differently.
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
64
01:30Oppositional Defiant Disorder
24
A persistent pattern of angry or irritable mood, defiant behavior, or vindictiveness characterizes Oppositional Defiant Disorder (ODD). Symptoms must occur over at least six months, involve interactions with individuals beyond siblings, and meet specific diagnostic criteria to be clinically significant. The disorder affects emotional regulation, social interactions, and behavior, often manifesting early in life and influencing long-term development and functioning.
Diagnostic Criteria and...
Diagnostic Criteria and...
24