唐氏综合征的JASPER (联合注意力,象征性游戏,参与和调节) 干预:试点研究
Anne-Michelle Engelstad1, Linnea Joffe-Nelson2, Sophie R Hurewitz2
1Division of Developmental Medicine, Boston Children's Hospital, Boston, MA, USA; Harvard Graduate School of Education, Cambridge, MA, USA.
联合注意力,象征性游戏,参与和调节 (JASPER) 干预措施有望改善唐氏综合征 (DS) 儿童的参与和调节. 父母有效地学习和使用JASPER策略,远程分娩可能会促进参与.
科学领域:
- 发展心理学是发展心理学.
- 临床干预研究研究临床干预研究
- 儿科行为健康儿童行为健康
背景情况:
- 患有唐氏综合征 (DS) 的孩子通常需要对语言,社交和情绪调节的支持.
- 行为干预并没有被广泛用于DS的这些发展需求.
- 联合注意力,象征性游戏,参与和调节 (JASPER) 干预提供了一个有希望的临床医生-护理人员介导的方法.
研究的目的:
- 描述DS儿童的行为表型.
- 评估JASPER干预后儿童参与度的变化.
- 评估护理人员在实施JASPER策略中的忠诚度,并为未来的研究提供信息.
主要方法:
- 一项试点研究涉及16名患有DS的幼儿及其照顾者.
- 随机分配到即时干预或等候名单控制组.
- 由于COVID-19大流行,干预的远程交付.
主要成果:
- 护理人员成功地获得并实施了JASPER策略.
- 初步数据表明,在游戏期间,联合参与和调节的改善.
- 观察到干预反应的个体差异,突出显示了异质性.
结论:
- 在患有DS的幼儿中,JASPER似乎是一种可行的干预措施,可以增强关节参与和情绪调节.
- 护理人员表现出对学习和应用JASPER策略的接受度.
- 远程输送JASPER可以提高参与者参与研究和临床计划的参与度.
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