语言支持高级癌症儿童及其家属的尊严
Carolyn Humphrey1,2, Shoshana Mehler2, Sarra O'Bryan2
1Department of Psychology, University of Mississippi, Oxford, Mississippi.
Pediatrics
|July 25, 2024
概括
儿科瘤学家在不到7%的讨论中使用了尊严语言,错过了在癌症儿童中肯定尊严的机会. 一个名为"Lend an EAR"的新模式旨在改善儿童瘤学中的沟通和支持尊严.
科学领域:
- 儿科瘤学 儿科瘤学
- 医学沟通 医学沟通
- 生物伦理学生物伦理学
背景情况:
- 尊严对于以人为中心的儿科护理至关重要.
- 在儿科瘤学中,支持儿童尊严的语言策略未得到充分研究.
- 这项研究解决了儿童癌症中尊重尊严的沟通理解的差距.
研究的目的:
- 识别和描述儿科瘤学家使用的语言,以识别和肯定癌症晚期儿童的尊严.
- 分析疾病再评估遭遇期间的沟通模式.
主要方法:
- 长度前性研究,涉及儿科瘤学家,癌症儿童和家庭之间的音频记录.
- 混合的演-诱导定性方法,用于内容分析的尊严语言.
- 对36名患者的91次讨论进行了主题分析,持续了24个月或直到死亡.
主要成果:
- 在45%的"坏消息"遭遇中,没有尊严的语言.
- 瘤学家花费不到7%的对话参与尊严语言.
- 维护尊严的关键主题包括授权,自主和尊重.
结论:
- 在儿童癌症护理中,有显著的机会来增强基于尊严的沟通.
- 提出了一个概念模型",借给一个耳朵",以指导尊严沟通.
- 未来的研究应该专注于患者/家长的观点,并将该模型纳入沟通培训中.
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