在BRCA1/2中的"身份盗窃":基因测试结果阳性和降低风险的干预措施的影响
Jonathan M Adler1, Sharlene Hesse-Biber2, Memnun Seven3
1Department of Psychology, Olin College of Engineering, Needham, MA, United States.
Frontiers in genetics
|July 25, 2024
概括
学习BRCA1/2病原体变异可能会引起痛苦. "身份盗窃"的概念可以解释患者对BRCA携带者身份和干预措施的不同反应,有助于量身定制的心理社会支持.
科学领域:
- 心理学 心理学 心理学
- 遗传学 遗传学 是一个
- 在瘤学瘤学.
背景情况:
- 乳腺癌基因的致病变体1/2 (BRCA1/2) 增加了终身癌症风险.
- 学习BRCA1/2携带者身份可能会导致严重的心理痛苦,焦虑,抑郁,脆弱性和耻辱感.
- 对BRCA携带者身份和降低风险的干预措施的情绪和应对反应是高度可变的,现有文献中发现的结果各不相同.
研究的目的:
- 探索"身份盗窃"的概念,作为对BRCA1/2携带者的异质情绪和应对反应的潜在解释.
- 检查叙事身份和身份盗窃如何与学习BRCA载体身份和接受医疗干预的经验有关.
- 为了调查患者在BRCA诊断和治疗后的身份解体和重新整合的经验.
主要方法:
- 与两个案例研究参与者的定性访谈.
- 对采访数据进行叙事分析,以了解患者的经历.
- 叙事身份理论的应用,特别是"身份盗窃"的概念.
主要成果:
- 案例研究显示,患者经历了"身份盗窃" - - 他们以前的自我叙述的解体.
- 参与者积极努力建立和重新整合作为BRCA载体的新身份.
- 初步发现表明,叙事身份和身份盗窃与遗传性癌症经验有关.
结论:
- "身份盗窃"的概念可能提供了一个统一的框架,以了解患者对BRCA载体状态的不同反应.
- 应用"身份盗窃"镜头可以为准确医疗保健提供量身定制的叙事干预措施的开发提供信息.
- 这种方法可以增强积极的应对策略,并改善BRCA载体的心理社会福祉.
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