重建还是不重建:在澳大利亚试点一项越南和阿拉伯乳房重建决策援助
Patsy S Soon1,2,3, Khouloud Kamalmaz1, Verena S Wu1,2
1Psycho-Oncology Research Group, Ingham Institute for Applied Medical Research, Liverpool, NSW 2170, Australia.
Current oncology (Toronto, Ont.)
|July 26, 2024
概括
对越南和阿拉伯语妇女进行了评估,评估了乳腺癌重建的文化适应的决策辅助工具 (DA). 结果表明DA是可以接受和有用的,但需要改善医学术语和文化敏感性,以获得更好的决策支持.
科学领域:
- 在瘤学瘤学.
- 健康差异 在健康上的差异
- 卫生沟通健康沟通
背景情况:
- 被诊断为乳腺癌的文化和语言多样性 (CALD) 妇女缺乏关于乳腺重建 (BR) 的决策资源.
- 现有的决策辅助工具 (DA) 可能无法充分满足CALD群体的独特需求.
- 本研究解决了越南和阿拉伯语妇女在文化上适当的决策支持BR的差距.
研究的目的:
- 评估针对接受乳腺癌治疗的越南和阿拉伯语妇女设计的DA的可用性和可接受性.
- 确定DA需要改进的领域,以提高其文化适当性和决策中的有效性.
- 评估DA对女性准备做出关于乳房重建的决策的影响.
主要方法:
- 一项两阶段的定性研究,涉及诊断为乳腺癌的越南语 (n=14) 和阿拉伯语 (n=11) 妇女.
- 参与者参与了大声思考或半结构化的电话采访,以提供对DA的反.
- 用于采访成绩单的诱导性主题分析;阿拉伯语说话的妇女还完成了决策准备 (PrepDM) 尺度.
主要成果:
- 一般来说,DA被认为是可以接受和有用的,可以提供关于BR选项的信息,并促使人们反思.
- 改善的关键领域包括尽量减少医学术语,解决围绕"乳房"一词的文化禁忌,填补信息空白.
- 阿拉伯语妇女在PrepDM评分表中获得高分 (平均值=4.8/5),这表明她们对决策做好了充分的准备.
结论:
- 文化上适应的DA可以成为支持CALD女性之间的BR决策的有效工具,但需要改进.
- 未来的DA必须考虑不同的信息需求和健康素养水平,以及文化细微差别.
- 医疗保健专业人员在CALD人群的共同决策中的作用仍然至关重要.
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