在标准化评估和共享决策后,患者报告的乳腺瘤保护经验的价值. 一个定性研究研究
Iliana Aristokleous1, Eirini Pantiora1, Olivia Sjökvist2
1Department of Surgery, Breast Unit, Uppsala University Hospital, 75237, Uppsala, Sweden; Department of Surgical Sciences, Faculty of Medicine, Uppsala University, 75105, Uppsala, Sweden.
概括
这项研究探讨了患者对瘤塑性乳房保护手术 (OPBCS) 的经验. 患者重视完整性,并发现一些患者报告的结果 (PRO) 调查问卷含糊不清,强调需要更好地记录患者报告的经验 (PRE).
科学领域:
- 在瘤学瘤学.
- 手术瘤学手术瘤学
- 患者报告的结果
背景情况:
- 患者报告的结果 (PRO) 是乳腺癌护理的关键质量指标.
- 患者报告的经验 (PRE) 是至关重要的,但在瘤塑性乳房保护手术 (OPBCS) 中没有充分记录.
- 这项研究解决了了解OPBCS患者体验的差距.
研究的目的:
- 探索接受OPBCS的患者的生活经历.
- 确定患者报告的结果和经验中的关键主题和挑战.
- 为改善OPBCS的以患者为中心的护理提供信息.
主要方法:
- 涉及122名接受OPBCS (2015-2021) 的女性的定性研究.
- 使用PRO和患者日记进行纵向跟踪,以深入记录经验.
- 采用了叙事研究方法和主题分析.
主要成果:
- 49.2%的患者超出了标准的PRO,报告了诸如副作用,辅助治疗影响和外部健康因素等主题.
- 26.7%的人认为PRO问卷不够具体,并表达了进一步的思考.
- 在不同的OPBCS技术中,患者的体验是一致的.
结论:
- 患者与OPBCS的经验集中在感知完整性和问卷清晰度上.
- 在PRO问卷中的含糊性需要注意.
- 记录PRE对于个性化评估和加强以患者为中心的乳腺癌护理至关重要.
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