探索自闭症青少年参与有关服务的决策
Meghan M Burke1, Megan Best1, W Catherine Cheung1
1Meghan M. Burke, Vanderbilt University; Megan Best, University of Illinois at Urbana-Champaign; W. Catherine Cheung, Northern Illinois University; Leann Smith DaWalt, University of Wisconsin at Madison; and Julie Lounds Taylor, Vanderbilt University Medical Center.
Intellectual and developmental disabilities
|July 28, 2024
概括
自闭症年轻人往往缺乏参与关于他们的残疾服务的决策. 虽然父母带头,他们有时会考虑自闭症青少年.
科学领域:
- 自闭症谱系障碍 (ASD) 研究研究
- 青少年和过渡服务研究研究
- 医疗保健的决策过程
背景情况:
- 服务对于过渡年龄的年轻人来说至关重要,但自闭症年轻人在服务决策中的参与仍然不清楚.
- 了解自闭症年轻人的观点对于开发有效的干预措施来增强他们的参与至关重要.
研究的目的:
- 探索自闭症年轻人对自闭症服务决策过程中的角色的看法.
- 确定自闭症青少年参与服务决策的障碍和促进者.
主要方法:
- 定性研究涉及对43名过渡年龄的自闭症年轻人的采访.
- 探索年轻人对有关残疾服务的决策的经验.
主要成果:
- 大多数自闭症青少年报告说,他们对有关残疾服务类型和方式的决策的参与很小.
- 当涉及时,决策主要涉及教育服务.
- 父母经常领导服务决策,但经常考虑自闭症青少年的意见.
结论:
- 自闭症青少年在服务决策中的参与是有限的,特别是在教育环境之外.
- 干预措施应旨在增加自闭症青年的参与度,尊重他们的观点.
- 这些发现对改善自闭症患者过渡服务的研究,政策和实践有影响.
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