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Multiple Sclerosis l: Introduction

Multiple Sclerosis l: Introduction

Multiple sclerosis is a chronic autoimmune disease of the central nervous system (CNS) that affects the brain, spinal cord, and optic nerves. It is an inflammatory demyelinating disorder and a leading cause of neurological disability in young adults.EpidemiologyMS commonly begins between 20 and 40 years of age and is twice as common in women. Its exact cause remains unclear, but genetic susceptibility contributes, with higher risk in first-degree relatives and identical twins. A greater...

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The Multiple Sclerosis Performance Test MSPT: An iPad-Based Disability Assessment Tool

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[多发性硬化症患者手臂功能评估问卷]

A N Boyko^1,2, A N Belova³, E M Rahmanova³

¹Pirogov National Medical Research University, Moscow, Russia.

Zhurnal nevrologii i psikhiatrii imeni S.S. Korsakova

|July 29, 2024

概括

在多发性硬化症 (MS) 中评估上肢功能对于患者护理至关重要. 本综述详细介绍了调查问卷,包括多发性硬化症问卷中的手臂功能 (AMSQ),以评估MS患者的手臂功能障碍.

关键词:

手臂手臂手臂手臂的手臂.评估评估的评估评估的评估.功能功能功能功能功能多发性硬化症多发性硬化症问卷调查问卷问卷调查问卷上肢上的上肢是什么意思

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Last Updated: Jun 1, 2026

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科学领域:

神经学神经学
康复医学康复医学康复医学
临床评估临床评估

背景情况:

手臂功能障碍是多发性硬化症 (MS) 的重要残疾症状,特别是在晚期.
对上肢功能的客观评估对于跟踪MS进展,评估治疗疗效和定制康复策略至关重要.
患者报告的结果测量 (PROMs),如问卷,对于以患者为中心的MS管理方法很重要.

研究的目的:

审查用于评估多发性硬化症患者上肢功能的现有问卷.
突出患者报告结果在管理MS相关的手臂功能障碍方面的重要性.
为提供多发性硬化症问卷 (AMSQ) 中手臂功能的详细概述.

主要方法:

对MS上肢功能评估的多维和单维问卷的文献综述.
描述三个特定于成员国和四个非特定于成员国的问卷.
在多发性硬化症问卷 (AMSQ) 中详细讨论了手臂功能.

主要成果:

有几个问卷可用于评估MS患者上肢功能障碍.
患者报告的结果措施为患者的经验和偏好提供了有价值的见解.
AMSQ是一种特定于疾病的工具,旨在评估MS患者的手臂功能,其应用在俄罗斯人口中需要文化适应和验证.

结论:

精确评估上肢功能对于有效的多发性硬化症管理至关重要.
与AMSQ一样,以患者为中心的问卷在评估手臂功能障碍和指导康复方面发挥着关键作用.
在在新的语言群体中实施像AMSQ这样的工具之前,文化适应和验证是必要的步骤.