潜在可治愈的胃食道癌症患者的信息需求
Kammy Keywani1,2, Egle Jezerskyte3,4, Mirjam A G Sprangers5
1Department of Surgery, Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands, k.keywani@amsterdamumc.nl.
Digestive surgery
|July 29, 2024
概括
胃食道癌症患者有一致的信息需求,不论其并发症或性别. 那些健康状况更好,焦虑程度更高的人发现,提供信息更有帮助,突出了定制的沟通需求.
科学领域:
- 在瘤学瘤学.
- 患者护理 患者护理
- 健康心理学 心理健康心理学
背景情况:
- 胃食道癌症患者的信息需求尚未得到充分研究.
- 这些患者面临复杂的治疗轨迹.
研究的目的:
- 根据术后并发症和性别,检查信息需求.
- 评估信息需求与与健康相关的生活质量 (HR-QoL) 之间的关联.
主要方法:
- 使用了EORTC-QLQ-INFO25,QLQ-C30和QLQ-OG25手术前后的问卷.
- 调查了五个信息领域:疾病,治疗,测试,自助和整体帮助力.
- 探索HR-QoL领域,包括全球健康状况,饮食限制和焦虑.
主要成果:
- 在有/没有并发症的患者之间或性别之间,没有发现信息需求的显著差异.
- 总体健康状况较高的患者报告说,在所有随访期间 (p < 0.001) 中,信息更有帮助.
- 增加的焦虑与在18-24个月 (p = 0.009) 和3-5年 (p < 0.001) 发现信息更有帮助的相关性.
结论:
- 胃食道癌症患者表现出一致的信息需求,无论并发症或性别.
- 较高的全球健康状况和高度的焦虑与信息的感知帮助度更高有关.
- 定制的沟通策略对于优化患者的理解和支持至关重要.
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