提供者和患有系统性红斑狼的青少年之间疾病活动的不一致感知:一个队列研究
Zanab Mian1, Terrence Calistro2, Kimberly Rapoza2
1Department of Pediatrics, Donald and Barbara Zucker School of Medicine at Hofstra-Northwell, Hempstead, NY; Division of Pediatric Rheumatology, Cohen Children's Medical Center of NY, New Hyde Park, NY.
The Journal of pediatrics
|July 29, 2024
概括
青少年狼患者比他们的医生感知到更高的疾病活动. 这种感知差距,特别是在严重病例或服用某些药物的患者中,可能会影响狼的结果.
科学领域:
- 儿科风湿病学 儿科风湿病学
- 患者-医疗服务提供者沟通
- 系统性红斑狼研究研究
背景情况:
- 在儿科狼中,患者和提供者对疾病活动的看法之间存在不一致,这可能会影响治疗的坚持和结果.
- 了解这种感知差距对于优化狼青少年的护理至关重要.
研究的目的:
- 调查狼青少年患者与他们的医疗保健提供者之间疾病活动感知不一致的程度和特征.
- 为了确定与这种不一致相关的因素.
主要方法:
- 在青少年狼患者中,对比患者报告和提供者报告的疾病活动评估的横截面研究.
- 分析不同疾病严重程度和药物使用的不一致性.
主要成果:
- 与他们的提供者相比,青少年患者始终报告了较高的疾病活动感知.
- 在所有疾病活动水平中观察到不一致,在高疾病活动,炎或接受皮质类固醇或mycophenolate mofetil治疗的患者中存在显著差异.
结论:
- 在青少年狼患者和提供者之间的疾病活动感知中存在显著的不一致性.
- 这种感知差距,特别是在特定的临床子组中,需要有针对性的干预措施来改善患者-提供者沟通,并可能提高疾病管理和结果.
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