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巴西版本的哈默斯密特功能运动量表扩展:跨文化适应和验证
Ana Carolina Monteiro Lessa de Moura1, Marina Belisário Carvalhais1, Gabriela Palhares Campolina Sampaio1
1Universidade Federal de Minas Gerais, Departamento de Pediatria, Belo Horizonte MG, Brazil.
Arquivos de neuro-psiquiatria
|July 29, 2024
概括
哈默斯密特功能运动扩展尺度 (HFMSE) 现在已在巴西葡萄牙语中验证,用于评估脊髓肌肉缩 (SMA) 患者的运动功能. 这种可靠的工具有助于评估可以坐着或走路的2岁以上的SMA患者.
科学领域:
- 神经学 神经学
- 康复医学 康复医学 康复医学
- 儿科物理治疗 儿科物理治疗
背景情况:
- 扩展的哈默斯密斯功能运动量表 (HFMSE) 是评估脊髓肌缩 (SMA) 的儿科患者运动功能的标准工具.
- 它通常用于2岁及以上的SMA患者,这些患者具有坐着和/或行走的能力.
研究的目的:
- 将HFMSE翻译成巴西葡萄牙语,并进行跨文化适应.
- 为了验证适应的巴西版本的HFMSE用于临床使用.
主要方法:
- 翻译和跨文化适应遵循已确定的国际准则.
- 巴西HFMSE被两名独立检查人员给20名SMA类型2和3的患者.
- 使用卡帕协议 (k) 和类内相关系数 (ICC) 评估了评价者之间的可靠性.
主要成果:
- 在HFMSE成功翻译和文化适应到巴西葡萄牙语.
- 这项研究包括20名参与者:有6人患有2型SMA,14人患有3型SMA.
- 巴西HFMSE表现出卓越的可靠性,ICC=1.00的总得分和卡帕>0.80的个别项目.
结论:
- 巴西版本的HFMSE是评估巴西SMA患者运动功能的有效和可靠的工具.
- 这种经过验证的工具将有助于临床医生评估可以坐着和/或行走的2岁及以上的SMA患者.
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