创建一个健康信息学数据资源,用于听力健康研究
Nishchay Mehta1,2, Baptiste Briot Ribeyre1,3, Lilia Dimitrov1,2
1NIHR University College London Hospitals Biomedical Research Centre, London, UK.
BMC medical informatics and decision making
|July 29, 2024
概括
国家卫生和社会护理研究所 (NIHR) 听力健康健康健康信息协作 (HIC) 正在标准化英国的听力数据. 这个倡议将各种数据集集集成到一个共同的模型中,转变听力研究和护理.
科学领域:
- 医疗信息学 医疗信息学
- 听力学研究 听力学研究
- 在医疗保健中的数据科学.
背景情况:
- 英国国家卫生和社会护理研究所 (NIHR) 建立了听力健康健康健康信息协作 (HIC) 机构,以集中听力健康数据.
- 该倡议旨在通过策划例行收集的听力健康信息来解决研究问题.
- 本研究概述了优先研究领域,治理和听力健康数据整合方法.
研究的目的:
- 确定听力健康的优先研究领域.
- 描述NIHR听力健康HIC的治理结构.
- 以纯音调听力测量 (PTA) 为案例研究,证明将听力健康数据集成到一个共同的数据模型中.
主要方法:
- 确定了听力健康的关键研究目标.
- 建立了NIHR听力健康HIC的治理结构.
- 观察医疗结果伙伴关系 (OMOP) 被选为一个案例研究的共同数据模型.
主要成果:
- 开发了一个数据架构,以促进数据从电子患者记录系统到研究系统的流动.
- 使用OMOP常用数据模型来标准化听力健康数据,包括纯音调听力测量 (PTA).
- 通过OMOPification过程,成功地从多个中心收集了丰富的数据集.
结论:
- 已经确定了常规收集的听力健康数据的优先研究领域.
- 这项研究表明,成功地将多中心听力健康数据集成和标准化到一个共同的数据模型中.
- 这个国家倡议鼓励更广泛的参与和数据利用,以推进英国的听力研究和患者护理.
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