共同设计一个基于wiki的个人科学社区知识管理系统
Katharina Kloppenborg1, Mad Price Ball2, Steven Jonas3
1Inserm U1284, Université Paris Cité, Paris, France.
Royal Society open science
|July 30, 2024
概括
个人科学,或对健康问题的自我研究,如果没有可访问的工具,就很难. 这项研究开发了个人科学wiki,一个同行生产的知识库,以支持自我追踪者和建立社区知识.
科学领域:
- *健康研究中的个人科学和公民科学.
- *数字健康工具和知识管理系统.
- *参与式设计和基于社区的研究.
背景情况:
- *个人科学涉及对健康问题的自我研究,但在协议开发和知识共享方面面临挑战.
- *在线社区提供支持,但个人科学从业者缺乏系统的知识获取工具.
- * 现有的自我跟踪数据往往是孤立的,阻碍了集体学习和共识建设.
研究的目的:
- * 发展一个同行产生的知识基础,支持个人科学从业者作为知识消费者和贡献者.
- * 与个人科学从业者一起应用参与式设计过程,以创建一个功能性平台.
- * 解决个人科学界对系统知识获取和管理的需求.
主要方法:
- * 一个参与式的设计过程,涉及个人科学从业者.
- * 开发个人科学维基,这是一个开放的自我追踪项目的存储库.
- * 用户研究与21名参与者进行平台测试,改进和信息架构探索.
主要成果:
- * 创建个人科学维基,这是一个积极使用的社区知识管理基础设施.
- * 识别扩大个人科学社区的障碍.
- * 获得了对个人健康查询信息需求,表示和架构的洞察力.
结论:
- * 个人科学维基为管理和访问个人科学中共享知识提供了有价值的基础设施.
- *参与式设计有效地吸引了从业人员,从而产生了可用的和相关的知识管理工具.
- *了解用户需求和信息架构对于支持个人进行个人健康自我研究至关重要.
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