开发一个以人为中心的痴呆症陈述偏好调查,利维体:个人和公共参与过程的价值
Paula Sinead Donnelly1, Aoife Sweeney1, Emily Wilson2
1Centre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Queen's University Belfast, Belfast, United Kingdom.
Frontiers in dementia
|July 31, 2024
概括
开发声明偏好 (SP) 调查需要患者的意见. 这项研究使用了混合的公众参与活动来设计调查,证明了对资源有限的研究的可行,以人为中心的方法.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与.
- 调查方法 调查方法
背景情况:
- 高质量的声明偏好 (SP) 调查需要严格的设计,包括利益相关者参与和代预测.
- 在SP调查开发过程中鼓励透明度,但对这一过程的报告仍然有限.
- 资源限制和参与者的脆弱性经常挑战传统的,密集的调查开发方法.
研究的目的:
- 在SP调查设计过程中,报告与Lewy体痴呆症研究咨询小组合作的结果.
- 评估一种替代的,资源高效的方法来开发SP仪器.
- 提高SP调查在受限制环境中的以人为中心性和可行性.
主要方法:
- 在一次公众参与活动中,采用了一种混合方法,将焦点组与突破面试结合起来.
- 最终用户参与和预测阶段被整合到一个单一的事件中.
- 研究咨询小组成员的反告知了调查仪器的修改.
主要成果:
- 调查工具的变化集中在属性修改,选择任务呈现,信息清晰度和缩放呈现上.
- 混合方法使小组头脑风暴和选择任务的初步可行性评估成为可能.
- 虽然有效,但这种方法限制了广泛的个人探索和多波代改进的机会.
结论:
- 与研究咨询小组的合作增强了SP调查设计的以人为中心性.
- 混合公众参与活动提供了一个可行的和务实的解决方案,以改善在时间和预算限制下改善SP调查设计.
- 这种方法考虑了目标人群的能力和脆弱性,在调查开发中展示了适应能力.
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