埃塞俄比亚儿童癌症治疗的以家庭为中心的护理 - - 一项定性描述性研究
Leul Deribe1, Eshetu Girma2, Nataliya Berbyuk Lindström3
1School of Nursing and Midwifery, Addis Ababa University, Addis Ababa, Ethiopia.
Journal of pediatric nursing
|July 31, 2024
概括
儿童癌症患者的以家庭为中心的护理 (FCC) 显示出低于最佳的实施,特别是在信息共享和家庭伙伴关系方面. 加强沟通和信息提供对于改善护理服务至关重要.
科学领域:
- 儿科瘤学 儿科瘤学
- 医疗保健提供 医疗保健提供
- 家庭支持系统 家庭支持系统
背景情况:
- 家庭对于支持患有癌症的儿童至关重要.
- 以家庭为中心的照顾 (FCC) 涉及父母作为照顾的合作伙伴.
- 联邦通信委员会原则包括尊严,尊重,信息共享,参与和合作.
研究的目的:
- 描述儿童癌症病房中以家庭为中心的护理服务.
- 评估蒂库尔安贝萨特种医院FCC的实施情况.
主要方法:
- 定性探索性描述性研究.
- 与18名参与者进行半结构面试 (13名家长,5名医疗保健提供者).
- 使用ATLAS.ti 9. 对转录和翻译的采访进行主题分析.
主要成果:
- 两个关键主题出现了:信息共享和启用和伙伴关系.
- 信息共享涵盖了家长的理解,期望和信息障碍.
- 启用和伙伴关系包括家庭参与,沟通和心理社会支持.
结论:
- 以家庭为中心的护理实践的实施情况不够理想.
- 需要改善儿童癌症信息,沟通和家庭参与护理.
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