晚期癌症青少年和年轻人的社会支持资源:定性分析
Nancy Lau1,2, Angela Steineck3, Casey Walsh4
1Center for Child Health, Behavior and Development, Seattle Children's Research Institute, 1920 Terry Ave, Seattle, WA, 98101, USA. nancy.lau@seattlechildrens.org.
BMC palliative care
|July 31, 2024
概括
患有晚期癌症的青少年和年轻人 (AYA) 在大部分支持上依赖家庭. 其他来源,如临床医生和同行提供具体的帮助,但一些AYA报告总体支持不足.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 心理社会支持 心理社会支持
背景情况:
- 患有癌症的青少年和年轻人 (AYA) 具有独特的息和支持性护理需求.
- 社会支持对于AYA应对,生活质量和心理社会福祉至关重要.
- 关于癌症患者的社会支持现有研究需要进一步探索,特别是对于晚期疾病患者.
研究的目的:
- 调查癌症晚期AYA获得的社会支持来源和类型.
- 了解患有晚期癌症的AYA在社会支持方面的具体需求和经验.
- 识别社会支持中对这个弱势群体的差距.
主要方法:
- 定性研究涉及半结构化,1: 1采访与晚期癌症的AYA.
- 针对性的内容分析被用来开发基于已建立的社会支持结构的代码书.
- 结果以代码频率报告的形式呈现,量化了支持的来源和类型,并为每个参与者分配了支持代码的总体充分性.
主要成果:
- 32名患有晚期癌症 (平均年龄18岁) 的AYA接受了采访.
- 家庭,特别是护理人员,是情感,信息,工具和社交伙伴支持的首要和普遍来源.
- 临床医生提供了信息和情感支持;同龄人和社区提供了情感支持和社交伙伴关系. 三分之一的人报告"混合支持",在某些领域存在缺陷.
结论:
- 护理人员是晚期癌症AYA的普遍支持系统,而其他来源满足特定需求.
- 需要进一步的研究来评估这一群体的社会支持需求.
- 建议以家庭为中心的息和支持性护理干预措施,以增强晚期癌症患者的社会支持资源.
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