通过反射性实践塑造理解:从参与性研究中对患有多发性硬化症的衰老的学习
Sofie Olsgaard Bergien1,2, Lasse Skovgaard3, Josephine Lyngh Steenberg3
1The Danish Multiple Sclerosis Society, Poul Bundgaards Vej 1, Valby, 2500, Denmark. sofiebergien@gmail.com.
Research involvement and engagement
|July 31, 2024
概括
参与性研究涉及患有多发性硬化症 (MS) 的老年人和患者协会的员工,揭示了对MS衰老的不同初步理解.反射性使这些多样化的观点能够融合为一种动态的,共存的对MS晚年生活的理解.
科学领域:
- 定性研究是一种定性研究.
- 参与式研究方法 参与式研究方法
- 卫生科学 卫生科学
背景情况:
- 参与式研究涉及科学知识创造和社会变革的不同观点.
- 很少有研究探讨研究伙伴之间的理解是如何演变的,或者不同观点是如何融合的.
- 这项定性研究是大型参与式混合方法项目的一部分,调查了大学研究人员,MS患者的老年人和患者协会员工对患有多发性硬化症 (MS) 的衰老理解的形成.
研究的目的:
- 探索多发性硬化症 (MS) 衰老的理解是如何通过不同研究伙伴之间的互动而形成的.
- 检查在参与式研究环境中将不同观点的老龄化与MS结合在一起的过程.
主要方法:
- 在丹麦进行了三年多的合作进行的定性研究.
- 研究伙伴包括多发性硬化症的老年人,患者协会的员工和大学研究人员.
- 数据收集涉及现场笔记,会议记录,焦点小组和个人访谈,使用专题网络分析进行分析.
主要成果:
- 在研究开始时,合作伙伴之间对MS衰老的不同理解是显而易见的,这些理解是由生活经验,专业背景和社会叙述所塑造的.
- 研究伙伴之间的反思过程导致了这些理解的重塑和合并.
- 一个更具动态的理解后来的生活与MS出现,在多个角度可以共存.
结论:
- 研究伙伴们带来了对MS衰老的各种理解,受他们独特背景的影响.
- 反思性实践对于使不同观点能够共存,促进参与和透明度至关重要.
- 这项研究强调了反射性在开发复杂的,在参与性研究中对MS老龄化的参与性研究中不断演变的理解中的价值.
相关概念视频
Patient-centered Care
2.0K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.0K
Modeling in Therapy
61
Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
61
Cognitive Development During Adulthood
73
Cognitive development continues throughout adulthood, undergoing significant shifts across early, middle, and late stages. Individual transition occurs from adolescent idealism to pragmatic and adaptable thinking in early adulthood. During this period, individuals learn to integrate personal beliefs with the recognition that other perspectives are equally valid. Exposure to the complexities of modern society, diverse experiences, and higher education contribute to this adaptive thought process,...
73
Documentation in Long-Term and Home Healthcare Setting
876
Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
Long-Term Care Facilities
876


