通过阿托皮性皮肤炎的医疗保健系统进行导航:分析德国患者的旅程
Lu Tizek1, Li Tizek1, S Schneider1
1School of Medicine, Department of Dermatology and Allergy, Technical University of Munich, Munich, Germany.
概括
患有亚托邦性皮肤炎 (AD) 的患者往往需要长时间,复杂的旅程来寻求护理,经常使用互联网获取信息,但发现它不令人满意. 改善疾病管理是获得更好的结果的关键.
科学领域:
- 皮肤病学 皮肤病学
- 医疗保健研究 医疗保健研究
- 患者旅程分析 患者旅程分析
背景情况:
- 亚托邦性皮肤炎 (AD) 是一种异质的皮肤疾病,影响所有年龄段的人的生活质量.
- 了解患者的旅程对于改善阿尔茨海默病患者的护理至关重要.
研究的目的:
- 为了调查在德国患有亚型皮肤炎 (AD) 的人的病人旅程.
- 专门研究整个AD患者旅程中互联网资源的作用和利用情况.
主要方法:
- 从2021年6月到2022年2月,使用自行管理的问卷进行了一项横截面研究.
- 参与者来自皮肤病诊所,大学医院和在线平台.
主要成果:
- 包括276名参与者 (平均年龄为46.3岁,平均疾病持续时间为26.9岁).
- 大多数患者咨询了多名医生 (中位数为五名),对治疗结果的不满导致医生改变.
- 很高的百分比 (76.4%) 使用互联网获取信息,但63%的人认为质量不满意.
结论:
- 该研究强调了在长时间的阿尔茨海默病患者旅程中广泛使用医疗治疗和积极寻求医疗保健.
- 对治疗方法和互联网信息质量的不满表明需要改进综合性疾病管理策略.
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