一项全国性的研究,评估意大利的专业儿科息护理的可获得性 - 患者,需求和关键问题:PalliPed研究
Franca Benini1, Anna Mercante2, Sara Di Nunzio3
1Department of Women's and Children's Health, Pediatric Palliative Care, Pain Service, University of Padua, Padua, Italy.
Journal of palliative medicine
|August 2, 2024
概括
帕利佩德项目揭示了意大利对增强儿科息护理 (PPC) 服务的重大需求. 调查结果突出了服务可用性,转诊流程和家庭支持方面的差距,强调需要改善医疗保健提供者的沟通.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 医疗保健网络分析 医疗保健网络分析
- 临床需要评估评估.
背景情况:
- 儿童息治疗 (PPC) 对有复杂需求的儿童至关重要.
- 意大利现有的PPC服务缺乏全面的国家数据.
- 了解目前的PPC访问和资源分配是必不可少的.
研究的目的:
- 描述意大利获得专业儿科息护理 (PPC) 的患者的特征.
- 评估区域PPC网络的范围,质量和资源.
- 确定PPC服务提供和家庭支持方面需要改进的领域.
主要方法:
- 全国范围的项目,涉及所有意大利的PPC中心.
- 自2022年10月24日起,包括接受专门PPC的儿科患者.
- 通过在线调查收集数据,使用ACCAPED尺度和多学科评估.
主要成果:
- 分析了867名患者,揭示了不充分的专门PPC服务.
- 确定需要改善转诊,特别是对于婴儿和瘤患者.
- 强调需要加强家庭支持,特别是对母亲的支持,并提高沟通技巧.
结论:
- PalliPed项目提供了意大利第一个针对PPC专业活动的全国性普查.
- 结果强调了PPC服务提供和资源分配的关键差距.
- 研究模型可以为国际PPC模型提供信息并进行比较.
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