在晚期癌症和慢性病中使用患者报告的结果仪表板共享决策和疾病管理
David Cella1,2,3,4, Maja Kuharic1, John Devin Peipert1
1Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, United States.
概括
一个共同设计的患者报告结果 (PRO) 仪表板改善了共享决策 (SDM) 并减少了晚期癌症和慢性病 (CKD) 患者的焦虑. 这种工具增强了患者和临床医生的沟通和护理.
科学领域:
- 数字健康数字健康
- 患者报告的结果
- 在瘤学瘤学.
- 腎臟病學 (nephrology) 是一種醫學專業.
背景情况:
- 患者报告的结果 (PROs) 对于管理慢性疾病至关重要.
- 共享决策 (SDM) 改善了患者的参与和结果.
- 将PRO整合到临床工作流程中可以改善护理服务.
研究的目的:
- 评估一个共同设计的PRO临床仪表板.
- 评估其对SDM和症状学的影响.
- 研究其在晚期癌症和慢性病 (CKD) 患者中的实用性.
主要方法:
- 一个PRO仪表板与20个不同的利益相关者共同设计.
- 使用了一个单组的,测试前测试后测试设计.
- 访问前收集了PRO (自我效能,生活质量,SDM) 并集成到EHR中.
主要成果:
- 招募了157名患者 (66名晚期癌症患者,91名CKD患者).
- 观察到SDM的显著改善 (增加15-17个百分点).
- 在临床上有意义地降低了焦虑水平 (P < .001).
结论:
- 共同设计的PRO仪表板可以增强SDM.
- 这些仪表板可能会减少患有晚期癌症和CKD的患者的焦虑.
- 将PRO集成到电子健康记录中显示出改善患者护理的前景.
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