利用知识转化为行动框架,改善多发性硬化症患者的住房和支持
Lee Cubis1, Sharyn McDonald2, Pamela Dean3
1Living with Disability Research Centre, La Trobe University, Melbourne, Vic, Australia; and Summer Foundation, Melbourne, Vic, Australia.
概括
患有多发性硬化症 (MS) 的人需要在家中进行重大修改,每天需要超过8小时的支持. 个性化住房和响应性融资对于独立和社区融合至关重要.
科学领域:
- 康复医学 康复医学 康复医学
- 关于残疾人的研究.
- 公共卫生政策 公共卫生政策
背景情况:
- 多发性硬化症 (MS) 为独立生活带来了独特的挑战.
- 对于患有多发性硬化症的人来说,最好的社区生活选择存在有限的研究.
- 了解住房和支持需求对于开发有效的干预措施至关重要.
研究的目的:
- 检查MS患者的住房和支持需求和偏好.
- 为计划共同设计的干预计划提供信息,以改善生活结果.
- 调整研究结果以适应澳大利亚的情况.
主要方法:
- 利用了知识转化为行动 (KTA) 框架.
- 现有项目的综合定量 (n=79) 和定性 (n=6) 数据.
- 综合发现并与参考组验证.
主要成果:
- 普遍存在高度的身体支持需求,包括家庭改造和辅助技术.
- 许多人每天需要超过8小时的付费支持.
- 个性化住房促进了独立和社区重新融入,尽管在支持提供方面发现了差距.
结论:
- 患有多发性硬化症的人需要主动和响应性资金,住房设计和支持服务.
- 结果将指导一个共同设计的干预措施,涉及有生活经验的人.
- 该干预旨在影响政策,提高MS人口的住房和生活成果.
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