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数字视网膜母细胞瘤文档支持护理和研究

Brenda L Gallie¹, Kaitlyn Flegg², Tran Truong³

¹Department of Ophthalmology and Vision Sciences, The Hospital for Sick Children, Toronto, ON; International Retinoblastoma Consortium; Princess Margaret Cancer Center/University Health Network, Toronto, ON; Department of Ophthalmology and Vision Sciences, University of Toronto, Toronto, ON; Temerty Faculty of Medicine, University of Toronto, Toronto, ON..

Canadian journal of ophthalmology. Journal canadien d'ophtalmologie

|August 2, 2024

概括

视网膜母细胞瘤护理的数字图纸和时间表已经从纸张发展到先进的数字平台. 新的DEPICT系统提供全球访问数字视网膜母细胞瘤护理,增强患者和家庭的参与.

科学领域:

眼科医生眼科眼科
儿科瘤学儿科瘤学
数字健康数字健康

背景情况:

从历史上看,视网膜母细胞瘤的文档依赖于手工方法,如彩色笔.
在SickKids的eCancerCareRB (eCCRB) 系统引入了数字图纸和时间表,以改善患者的护理,教育和研究.
这种数字化方法标志着与传统的纸质记录相比取得了重大进展.

研究的目的:

评估eCancerCareRB (eCCRB) 系统在治疗视网膜母细胞瘤方面的有效性.
为全球数字视网膜母细胞瘤护理引入和评估新的DEPICT HEALTH (DEPICT) 系统的能力.
展示数字工具在儿童癌症管理中的演变.

主要方法:

利用eCCRB的时间表来跟踪患者的治疗和日期.
使用SwimmerRB工具分析eCCRB数据,识别瘤复发和治疗有效性.
开发了标准视网膜母细胞瘤治疗的"后果"评分系统,以量化结果.

主要成果:

该eCCRB系统包括了700名在2001年至2023年期间接受治疗的视网膜母细胞瘤患者.
游泳者RB分析比较了不同的动脉内化疗方案和治疗有效性.
该研究为基于云的DEPICT系统奠定了基础,即将取代过时的eCCRB.

结论:

eCCRB是基于云的DEPICT系统的成功原型.
DEPICT旨在在全球范围内提供全面的数字视网膜母细胞瘤护理,使家庭成为合作伙伴.
通过国际视网母细胞瘤联盟,DEPICT将可以在全球范围内实施.

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