支持与痴呆症患者的决策:与经验丰富的专家合作的范围审查协议
Tamara Sussman1, Xue Ping Ma2, Oluwagbemiga Oyinlola2
1School of Social Work, McGill University, Montreal, Quebec, Canada tamara.sussman@mcgill.ca.
BMJ open
|August 3, 2024
概括
痴呆症患者经常被排除在影响他们的决策之外. 本范围审查记录了对痴呆症支持决策的知识,旨在通过包括他们的声音来改善研究和实践.
科学领域:
- 老年学是一门学科.
- 关于残疾人的研究.
- 卫生法律和政策卫生法律和政策
背景情况:
- 联合国残疾人权利公约强调在决策过程中支持残疾人.
- 痴呆症患者经常被排除在影响他们的生活的决策之外,从而造成了权利和参与方面的巨大差距.
- 现有的研究缺乏对支持决策 (SDM) 的全面概述,特别是针对痴呆症患者.
研究的目的:
- 对有关痴呆症患者支持决策的当前知识进行范围审查.
- 确定经验文献中讨论的SDM领域以及影响其实施的实践/因素.
- 通过弥合文学与生活经验之间的差距,为未来的研究和临床实践提供信息.
主要方法:
- 使用Arksey和O'Malley的六个阶段框架进行范围审查.
- 搜索关键数据库 (MEDLINE,PsycINFO,CINAHL,AgeLine,社会科学摘要) 的英语科学文献从2005年起.
- 与痴呆症患者和护理合作伙伴进行咨询,以验证发现并捕捉生活现实,遵守PRISMA-ScR指南.
主要成果:
- 该审查通过2023年8月至10月期间进行的初步搜索确定了56个符合条件的文章,并于2024年6月更新.
- 分析将集中在SDM和促进者/抑制者的领域,由痴呆症患者的实践经验提供信息.
- 该审查旨在综合关于痴呆症患者SDM实践的经验证据.
结论:
- 这一范围审查将为痴呆症患者的支持决策提供全面的理解.
- 结果将突出推动研究和实践的关键领域,以确保将痴呆症患者纳入决策过程.
- 伦理考虑和基于社区的传播策略是审查影响的组成部分.
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