患者参与多病症:对患者报告的结果措施的系统审查
Serena Barello1,2, Gloria Anderson3, Caterina Bosio1
1EngageMinds HUB - Consumer, Food and Health Engagement Research Center, Università Cattolica del Sacro Cuore, Milan, Italy.
Frontiers in psychology
|August 5, 2024
概括
针对多种疾病的患者参与工具缺乏可靠性和有效性. 这一系统性审查发现,在患者参与,激活和赋权方面的措施中,显著需要改进心理测量特性.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 以患者为中心的护理
- 心理测量 心理测量 心理测量
背景情况:
- 越来越重视患者参与,赋权和激活管理多病症.
- 患有多种慢性疾病的个人越来越多地参与自己的医疗保健.
- 需要验证的工具来衡量患者参与这一群体.
研究的目的:
- 系统地审查和评估患者参与度测量工具的心理特征,用于成年人多病症.
- 评估这些工具在患者参与计划中的适用性.
- 识别当前测量仪器中的差距.
主要方法:
- 在多个数据库 (PubMed,Scopus,Web of Science,PsycInfo) 和灰色文献中进行全面的搜索.
- 包括衡量参与,赋权,激活和参与的研究.
- 使用COSMIN检查清单进行方法质量评估.
- 数据提取和合成心理特征的数据.
主要成果:
- 在20篇文章中确定了8种工具,衡量了患者参与的各个维度.
- 大多数工具是最近在欧洲或美国开发的.
- 显著缺乏可靠和有效的患者参与措施,用于多病症.
- 对诸如不变性,可靠性和响应性等关键心理测量属性的证据有限.
结论:
- 目前针对多种疾病的患者参与措施与相关结构重叠,但也不同.
- 现有工具的方法质量和心理测量特性需要大幅度改进.
- 需要改进的测量工具,以准确地捕捉成年多病症患者的患者参与.
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