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命名低血糖症:一类糖尿病的年轻人及其家属的叙事工具
Francisco Sobral do Rosário1,2, Marta Soares2,3, Filipe Mesquita2
1Diabetology Department, APDP-Diabetes Portugal, Rua Rodrigo da Fonseca, 1, 1250-189 Lisbon, Portugal.
Diabetology international
|August 5, 2024
概括
一个叙事工具改善了1型糖尿病的年轻人和他们的家人关于低血糖的沟通. 这种方法有助于医疗保健专业人员更好地了解个人经历.
科学领域:
- 内分泌学 在内分泌学.
- 心理学 心理学 心理学
- 沟通研究 沟通研究
背景情况:
- 1型糖尿病的低血糖症给青少年,家庭和医疗保健提供者带来了沟通挑战.
- 有效的沟通对于管理1型糖尿病和预防并发症至关重要.
研究的目的:
- 探索叙事工具在理解1型糖尿病青少年中低血糖症的实践经验方面的实用性.
- 确定叙事技巧如何弥合与低血糖相关的沟通差距.
主要方法:
- 进行了半结构面试,包括六个开放式问题.
- 使用叙事技巧来捕捉参与者的经历.
- 用专题和比较分析来分析数据.
主要成果:
- 青少年 (10-18岁) 和他们的亲属 (30-59岁) 参与 (n=103).
- 年轻的青少年 (10-14岁) 更多地关注症状和寻求帮助,而年长的青少年 (15-18岁) 则强调自主.
- 亲属表达了更多的"恐惧"和"责任",而青少年则报告了"不适"和"丧".
结论:
- 一个叙事工具有效地突出了常见的低血糖体验的独特方面.
- 这种方法对青少年,亲属和医疗保健专业人员在1型糖尿病管理中证明是有益的.
- 叙事工具可以揭示知识差距,并为干预策略提供信息.
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