在慢性疾病患者中评估数字收集的患者报告结果和经验的基于人口的使用和益处:PROM慢性研究协议
Janis Nikkhah1, Viktoria Steinbeck1, Thomas G Grobe2
1Department of Healthcare Management, School of Economics and Management, Technical University Berlin, Berlin, Germany.
JMIR research protocols
|August 5, 2024
概括
本研究研究使用电子患者报告结果 (ePROM) 和经验测量 (ePREM) 来改善德国的慢性疾病护理. 它评估了这种方法是否能够识别低价值护理,并有助于患者的自我管理.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 数字健康数字健康
- 以患者为中心的护理
背景情况:
- 慢性疾病带来了巨大的负担,持续的护理不足和过度提供.
- 当前的质量指标往往忽视了患者的观点.
- 患者报告的结果指标 (PROM) 和患者报告的经验指标 (PREM) 对于识别护理缺口和支持自我管理至关重要.
研究的目的:
- 评估电子PROM和PREM (ePROM/ePREM) 对德国慢性病患者的益处和有效性.
- 评估ePROM/ePREM数据是否可以告知卫生系统的性能,并识别低价值护理.
- 检查患者对数字PRO反的反应及其对健康行为的影响.
主要方法:
- 一个涉及德国全国范围的保险公司的前性队列研究.
- 数字调查随机选择的患有喘,COPD,糖尿病和冠状动脉疾病的患者一年内4次.
- 将患者报告的数据与医疗保险数据联系起来,以分析反应率,结果变化和医疗保健利用率.
主要成果:
- 为PROM慢性研究收集数据于2023年10月开始,邀请了20万名患者.
- 数据分析正在进行中;预计2024年秋季的临时结果将在2025年最终公布.
- 目前还没有结果,因为数据收集和分析正在进行中.
结论:
- 这项研究旨在解决基于人口的PROM/PREM用于慢性疾病的研究缺口.
- 调查结果将为全系统的方法提供潜在信息,以识别低价值护理和评估质量变化.
- 这项研究将确定PRO反的有用性及其与患者健康行为变化的关联.
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