利用患者倡导主导的临床网络,让多样化,以社区为基础的网站参与实施有效性研究
Andrew Ciupek1, Lou-Anne Chichester2, Rashmi Acharya3
1GO2 for Lung Cancer, Washington, DC, United States. aciupek@go2.org.
BMC health services research
|August 5, 2024
概括
患者倡导团体可以有效地招募各种社区实践进行临床试验. 有针对性的宣传是关键的,尽管人员限制仍然是参与的障碍.
科学领域:
- 临床研究行动临床研究行动.
- 基于社区的参与式研究.
- 临床试验中的健康差异
背景情况:
- 在临床试验中参与多样化的患者群体对于公平的医疗保健至关重要.
- 基于社区的实践为增加代表性不足的群体获取机会提供了一条途径.
- 患者倡导组织可以促进临床试验招聘.
研究的目的:
- 评估患者倡导组织领导的网络在招募多样化的社区实践作为临床研究场所的有效性.
- 在肺癌查计划中评估吸烟戒烟实施有效性试验的招聘模式.
主要方法:
- 一个肺癌倡导组织 (GO2为肺癌) 招募了17个实地网站进行戒烟试验.
- 招聘使用了授予前的支持信,一般信息传播和有针对性的宣传.
- 从非参与站点收集了参与障碍的信息.
主要成果:
- 有针对性的宣传成功招募了17个地点中的16个,覆盖13个州和4个地区.
- 招募的地点包括多样化的查量,经验水平和主要基于社区的实践 (10/17).
- 不足够的人员带宽是参与率下降的主要原因 (总体为33%,社区网站为45%).
结论:
- 学术研究人员和患者倡导组织之间的合作模式可以有效地参与多样化,基于社区的临床研究网站.
- 通过提供资源来解决人员限制是提高社区实践参与临床研究的必要条件.
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