综合发育评估中的家庭参与:不同母亲的观点
Ariel O Blakey1, Jenna Sandler Eilenberg1, Nicole Cardona1
1Department of Psychological and Brain Sciences, Boston University, Boston, MA.
Journal of developmental and behavioral pediatrics : JDBP
|August 7, 2024
概括
家庭参与有助于边缘化的母亲在为患有自闭症谱系障碍 (ASD) 的儿童进行发育评估. 这种支持对于早期诊断和改善儿童结果至关重要.
科学领域:
- 儿科发展心理学 儿科发展心理学
- 临床儿童心理学 临床儿童心理学
- 文化心理学 文化心理学
背景情况:
- 早期诊断和家庭支持对于患有自闭症谱系障碍 (ASD) 的儿童至关重要.
- 与白人儿童相比,种族和少数民族的儿童面临着延迟诊断,加剧了结果差异.
- 关于在发育评估过程中家庭参与的研究有限,特别是考虑到跨文化家庭动态.
研究的目的:
- 探讨家庭参与发展评估的性质和影响,这些评估针对有发展迟缓或可能患有自闭症的儿童的边缘化母亲.
- 了解跨文化背景的家庭角色和参与如何不同.
- 确定利用家庭支持的潜在策略,以改善ASD的早期识别和干预.
主要方法:
- 定性研究涉及27名孩子的母亲,孩子的自闭症查呈阳性,但没有正式的ASD诊断后评估.
- 半结构面试的重点是发展查,服务和家庭支持的经验.
- 应用转录数据的主题分析,按伴侣地位分层,以检查家庭组成差异.
主要成果:
- 母亲积极寻求家庭参与关于发展评估的决策.
- 家庭支持影响了母亲在评估过程中应对后勤挑战的能力.
- 家庭成员的情感支持是母亲的一个重要因素.
- 根据合作伙伴地位,观察到决策和后勤支持方面的差异.
结论:
- 家庭参与为导航发育评估过程的母亲提供了巨大的好处.
- 利用家庭支持可以改善家长的导航,并可能提高儿童发育障碍的结果.
- 了解家庭角色的文化差异是优化支持系统的关键.
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