重新想象美国自闭症土著儿童的支持:解决不足识别和服务差距的问题
Allyson Kristofik1, Katandria Love Demps2
1Independent Researcher, Cedar Hill, TX, USA.
Neuropsychiatric disease and treatment
|August 7, 2024
概括
数据的稀缺性阻碍了德克萨斯州土著儿童有效的自闭症服务. 需要一种新的方法来改善自闭症谱系障碍 (ASD) 的土著人口的数据收集和文化相关的支持系统.
科学领域:
- 公共卫生 公共卫生
- 医疗保健服务研究 医疗服务研究
- 土著健康土著健康
背景情况:
- 关于德克萨斯州土著儿童自闭症谱系障碍 (ASD) 服务的数据有限.
- 现有的文档缺陷导致了数据的误解,并阻碍了对支持系统的理解.
研究的目的:
- 突出收集美国土著人口中自闭症数据的挑战,特别是在德克萨斯州.
- 倡导一种变革性的方法来报告自闭症患病率和为土著儿童提供服务.
主要方法:
- 一篇分析数据收集陷的观点文章.
- 检查包括文化身份,政府信任和残疾身份在内的障碍.
主要成果:
- 在德克萨斯州,关于自闭症的本土服务数据显著缺乏.
- 识别阻碍数据收集和有效提供服务的文化和系统障碍.
结论:
- 为了为土著儿童提供量身定制的ASD服务,数据收集和报告的彻底转变至关重要.
- 为提高数据生成和可用性制定路线图对于公平参与和改进的支持系统至关重要.
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