多发性硬化症数字护理途径的影响:观察性研究
Märt Vesinurm1, Anna Maunula2,3, Päivi Olli4,5
1Institute of Healthcare Engineering and Management, Department of Industrial Engineering and Management, Aalto University School of Science, Espoo, Finland.
JMIR human factors
|August 7, 2024
概括
多发性硬化症 (MS) 的数字护理途径 (DCP) 显示了高用户满意度,并改善了心理健康. 这项补充服务对管理MS等慢性疾病充满希望.
科学领域:
- 神经学 神经学
- 数字健康数字健康
- 患者护理管理的管理.
背景情况:
- 赫尔辛基大学医院开发了一个数字护理途径 (DCP),以提高多发性硬化症 (MS) 患者的护理质量.
- 该DCP是专门为新诊断的个人设计的,以帮助他们适应慢性疾病.
研究的目的:
- 在MS DCP中调查用户行为.
- 评估DCP对医疗保健利用,患者感知健康和满意度的影响.
- 评估患者教育介导的健康结果的变化.
主要方法:
- 从2020年3月到2022年底收集的数据,包括用户参与度量.
- 病例控制研究比较DCP用户 (n=63) 与非用户 (n=112) 在1年内.
- 调查评估了一个子组 (n=36) 的患者满意度 (NPS) 和功能健康 (MSIS).
主要成果:
- 79.1%的符合条件的患者使用了MS DCP,在第一年内参与度很高.
- 两组之间传统的医疗保健访问 (医生,护士,ED,住院日) 没有显著差异.
- 在"其他服务"中,MS DCP与2.05次访问的增加相关.
- 心理功能健康在3至6个月之间显著改善.
- 在12个月内,患者满意度从NPS 21增加到NPS 63.
结论:
- 该MS DCP被广泛采用为MS管理的补充工具,显示了高用户满意度.
- 该服务对用户的心理健康产生了积极的影响.
- 数字护理途径显示出管理MS等慢性疾病的巨大潜力.
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