在遗传性血栓友爱症中体现了遗传遗传的体验
Edina Tomán1, Judit Nóra Pintér2, Rita Hargitai3
1Doctoral School of Psychology, Department of Counseling and School Psychology, Institute of Psychology, ELTE Eötvös Loránd University, Budapest, Hungary.
Health (London, England : 1997)
|August 8, 2024
概括
患有血栓友爱症的患者将自己的身体视为遗传风险的存储库,通过形成脆弱的身份和接受家庭责任来适应. 这塑造了他们生活在健康和疾病之间的边界的经验.
科学领域:
- 医学社会学 医学社会学
- 遗传学 是一个遗传学.
- 现象学的现象学
背景情况:
- 遗传遗传显著影响健康感知和家庭动态.
- 了解遗传风险的体现经验对于患者适应至关重要.
- 血栓友的诊断在导航个人和家庭叙述中提出了独特的挑战.
研究的目的:
- 探索患有血栓友爱症的患者遗传遗传的体现经验.
- 检查患者如何感知脆弱性,并在家庭中谈判遗传信息.
- 了解适应过程和身份形成,以应对血栓友.
主要方法:
- 解释性的现象学分析.
- 在匈牙利进行了10次深入采访,对被诊断患有血栓友爱症和静脉血栓栓塞疾病的患者进行了深入采访.
- 确定了三个核心经验主题:身体作为风险的存储库,家庭遗产和血栓友的有限性.
主要成果:
- 患者将自己的身体解释为遗传风险的存储库,形成基因脆弱的身份.
- 适应血栓友爱症包括接受与遗传史相关的新的家庭责任.
- 个人经历了临界性,在健康和疾病之间处于边界状态,受到医疗不确定性和生活事件的影响.
结论:
- 在血栓友爱患者中,遗传遗传体现的经验塑造了身份和家庭责任.
- "基因脆弱身份"的概念是适应慢性遗传风险的关键.
- 血栓友是一种临界状态,其特点是健康和疾病之间的动态透性.
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