生活质量和与帕金森病相处:在爱尔兰背景下进行定性探索
Irene Cassidy1, Owen Doody2, Margaret Richardson3
1Department of Nursing and Midwifery, Faculty of Education and Health Sciences, Health Research Institute, Ageing Research Centre, University of Limerick, Limerick, Ireland. Irene.Cassidy@ul.ie.
BMC neurology
|August 8, 2024
概括
这项定性研究探讨了帕金森病 (PD) 患者的生活质量. 研究结果显示,独立和自我管理策略显著影响患有这种渐进性疾病的个体的福祉.
科学领域:
- 神经学 神经学
- 质量健康研究 质量健康研究
- 患者报告的结果
背景情况:
- 帕金森病 (PD) 是一种不可治愈的,进展性神经系统疾病.
- 不同的进展率显著影响患者的生活质量 (QoL).
- 以前的研究主要使用定量方法来评估PD中的QoL.
研究的目的:
- 质量地探索影响帕金森病患者自我报告生活质量的因素.
- 为了更深入地了解患有PD的个体的生活经历.
- 从患者的角度确定QoL的关键决定因素.
主要方法:
- 采用了一种定性描述方法.
- 与18名参与者进行了半结构面试,他们有不同的与健康相关的QoL.
- 按照布劳恩和克拉克的步骤进行主题分析,用于分析采访成绩单.
主要成果:
- 四个主要主题出现了:"生活中断","争取独立的"我"",揭开身份,角色和关系"和"重塑生活".
- 这些主题突出了PD对参与者的生活多方面的影响.
- 波动的运动和非运动症状的经历深深地影响了身体,功能,心理,社会和精神的维度.
结论:
- 能够更深入地了解患有PD的生活经验及其对生活质量的影响.
- 独立感受对QOL产生了积极的影响,而依赖感则引起了消极的情绪.
- 自主管理策略,支持性的社区模式和先进的护理角色可以提高PD患者的QoL.
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