同样的过渡,不同的视角:与自闭症年轻人和家长进行的双向面试进行比较
Hillary Steinberg1, Tamara Garfield1, Anne Roux1
1AJ Drexel Autism Institute, Drexel University, Philadelphia, Pennsylvania, USA.
Autism in adulthood : challenges and management
|August 9, 2024
概括
自闭症青少年和他们的父母在过渡到成年时对独立性和未来目标有不同的看法. 这项研究强调了为各种自闭症年轻人及其家人提供量身定制的支持的需要.
科学领域:
- 发展心理学 发展心理学
- 自闭症谱系障碍研究研究
- 家庭社会学 家庭社会学
背景情况:
- 对于自闭症青少年来说,过渡到成年是具有挑战性的,因为青少年和家长之间的目标差异往往加剧了这一点.
- 现有的关于这种过渡的自闭症研究主要集中在白人,资源较高的人群上,来自多元化,低收入或黑人家庭的数据有限.
- 需要研究包括代表性不足的自闭症年轻人及其家人的观点,以改善过渡期的结果.
研究的目的:
- 探索自闭症青少年及其家长在城市低资源学区过渡到成年人的观点.
- 调查如何与自闭症年轻人及其父母进行双向面试,可以在这个生命阶段阐明不同的目标和价值观.
主要方法:
- 与来自不同背景的自闭症年轻人及其居住父母进行了四组双层面试 (三个黑人家庭,一个白人低收入家庭).
- 所有自闭症青少年都在1-6年之前完成了高中教育,并且需要在过渡到成年时获得支持.
- 与家长和年轻人进行了采访,有时是联合进行的,以收集对他们的经验和感知的全面见解.
主要成果:
- 出现了三个关键主题:独立,结构化过渡和人际关系,父母和年轻人之间有不同的概念化.
- 父母强调长期的规范性目标 (例如,财务独立),而年轻人则专注于当前有意义的经验和独立的社会方面.
- 他们还注意到对持续的结构化支持和自闭症青少年同行关系的重要性的看法有所不同.
结论:
- 标准的过渡研究问题可能无法捕捉到各种自闭症青少年及其家人的细微观点.
- 研究结果强调了在自闭症过渡研究中考虑不同目标和价值观的重要性,特别是对于代表性不足的群体.
- 这项研究可以为开发更具包容性的研究方法和量身定制的支持系统提供信息,以改善所有自闭症年轻人的过渡结果.
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