与自闭症患者有饮食障碍的伦理联合制作的障碍和促进者
Emy Nimbley1,2, Ellen Maloney1,2, Kyle Buchan1,2
1Department of Clinical Psychology, School of Health in Social Science, University of Edinburgh, Edinburgh, EH8 9AG, UK.
Journal of eating disorders
|August 9, 2024
概括
自闭症和饮食障碍研究中的道德共同生产需要解决诸如不平等的伙伴关系和沟通差异等障碍. 促进者包括共享权力,透明度和自闭症肯定方法,以确保有意义的合作.
科学领域:
- 神经科学和精神病学 在
- 社会科学 社会科学 社会科学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 联合制作,研究人员和体验社区之间的合作,在自闭症和饮食障碍研究中变得越来越重要.
- 伦理联合制作指南不清楚,需要研究挑战和解决方案,以便与患有饮食障碍的自闭症个体进行有意义的接触.
研究的目的:
- 探索与有饮食障碍的自闭症个体进行道德联合制作的障碍和促进者.
- 确定有效和道德的研究合作策略.
主要方法:
- 参与30名合作者进行了五次研讨会,讨论障碍和促进者.
- 同步 (在线) 和异步 (离线论坛) 数据都通过主题分析收集和分析.
- 主题由神经类型和自闭症研究人员共同开发,这些研究人员有过/活着的饮食障碍经验.
主要成果:
- 发现的障碍包括不平等的伙伴关系,研究难以获得,因诊断而被排除,以及沟通差异.
- 促进者包括共享权力 (强调关系而不是角色和创造性补偿),清晰度和透明度,以及自闭症肯定方法.
结论:
- 与有饮食障碍的自闭症个体进行道德合作,可以为社区带来有影响力的研究.
- 成功的关键策略包括共享权力,长期关系,适应性沟通和自闭症肯定实践.
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