在少数群体中增加研究参与:黑人女性炎症和陶研究的一个例子
Joy Stradford1,2, Nadine C Heyworth3, Michelle Jackson3
1SDSU/UCSD Joint Doctoral Program in Clinical Psychology, San Diego, California, USA.
概括
黑人妇女在阿尔茨海默氏症和相关痴呆症 (ADRD) 研究中面临重大障碍. 社区参与的研究 (CER) 方法,如黑人女性炎症和研究 (BWITS),对于增加参与和了解ADRD风险因素至关重要.
科学领域:
- 神经科学是一个神经科学.
- 公共卫生 公共卫生
- 社会学 社会学 社会学
背景情况:
- 黑人女性患阿尔茨海默病和相关痴呆症 (ADRD) 诊断的比例较高,但在研究中代表性不足.
- 历史上的医疗不信任,有限的准入和限制性标准造成了黑人女性参与研究的重大障碍.
研究的目的:
- 描述社区参与研究 (CER) 方法在开发黑人女性炎症和陶氏研究 (BWITS) 中的应用.
- 为了确定ADRD的生物心理社会风险因素,特别是在黑人妇女中.
- 为未来在不同人群中进行ADRD研究提供指导方针,并根据既有框架提供信息.
主要方法:
- 利用了基于社区的参与式研究 (CBPR) 原则.
- 纳入国家少数民族健康与健康差异研究所 (NIMHD) 的指导方针.
- 从以患者为中心的结果研究机构 (PCORI) 的应用框架来告知研究设计.
主要成果:
- 该CER方法促进了BWITS协议的开发,解决了参与障碍.
- 建立了ADRD研究中少数群体未来研究的框架.
- 强调在研究设计中考虑历史背景和社区参与的重要性.
结论:
- 社区参与的研究对于克服障碍和增加代表性不足的群体参与ADRD研究至关重要.
- 该BWITS研究作为包容性研究设计的模型.
- 为旨在对少数群体进行研究的研究人员提供了建议.
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