父母报告的结果措施评估罕见神经发育障碍患者的沟通:系统性审查
Jacinta M Saldaris1,2, Jeremiah Ayalde1, Samali Kankanange1
1Telethon Kids Institute, Nedlands, Western Australia, Australia.
International journal of language & communication disorders
|August 14, 2024
概括
患有罕见神经发育障碍 (RNDD) 个体的家长护理人员需要验证的临床试验沟通措施. 这次审查发现使用了16项措施,但只有6项具有RNDD特定验证,突出了需要更多研究的需求.
科学领域:
- 神经发育障碍 神经发育障碍
- 通信科学 通信科学
- 心理测量 心理测量 心理测量
背景情况:
- 沟通障碍是罕见神经发育障碍 (RNDD) 患者的护理人员的一个重要问题.
- 经过验证和响应的结果测量对于评估RNDD临床试验中的疾病修饰疗法至关重要.
结论:
- 虽然对于RNDDs存在众多沟通措施,但对于大多数RNDDs来说,强大的验证数据很少.
- 开发和验证可靠和准确的RNDD患者沟通措施至关重要,以支持未来的临床试验.
- 本综述提供了现有心理测量数据的目录,并强调了未来RNDD研究中适合目的的措施的必要性.
相关概念视频
01:19Autism Spectrum Disorder
77
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
77
01:25Role of Communication in the Nursing Process I: Assessment and Diagnosis
4.3K
The nursing process uses scientific reasoning, problem-solving, and critical thinking to guide nurses in providing patients with appropriate care. This process is a systematic approach to recognize, avoid, and treat current or potential health issues while promoting the patient's well-being.
The nursing process considers the patient's emotional and physical well-being. The process can be repeated or stopped at any point if judged essential. Assessment is the first step in the nursing...
The nursing process considers the patient's emotional and physical well-being. The process can be repeated or stopped at any point if judged essential. Assessment is the first step in the nursing...
4.3K
01:08Role of Communication in the Nursing Process III: Evaluation and Documentation
1.3K
A successful patient outcome depends mainly on the evaluation stage of the nursing process. Evaluation determines effectiveness by reviewing what was done previously after the completion of nursing interventions. Every time a healthcare professional steps in or administers treatment, they must reassess or evaluate the action to ensure the intended result. During the evaluation phase, there are three probable patient outcomes:
1.3K
01:21Barriers to Effective Communication II
3.6K
The barriers to effective communication also include cultural barriers, semantic barriers, gender barriers, and time constraints.
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
3.6K