患有神经发育障碍和医疗复杂性的儿童的需求:护理人员的观点
Dércia Materula1, Genevieve Currie2, Xiao Yang Jia1
1School of Public Policy, University of Calgary, Calgary, Alberta, Canada.
Research in developmental disabilities
|August 14, 2024
概括
患有神经发育障碍和医疗复杂性 (NDD-MC) 的儿童的照顾者面临着由于系统分散而导致的未满足需求. 推基于需求的计划来改善家庭的生活质量.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 家庭支持服务 家庭支持服务
- 护理协调 护理协调
背景情况:
- 患有神经发育障碍和医疗复杂性的儿童 (NDD-MC) 需要在多个部门之间进行广泛的护理协调.
- 这些儿童的家庭经常面临重大挑战,原因是复杂的行为和关于支持需求的有限信息.
研究的目的:
- 综合了解养育患有NDD-MC.儿童的家庭的需求.
- 确定具体的协调挑战和对家庭生活质量的影响.
主要方法:
- 一个连续的探索性混合方法研究,涉及67名NDD-MC儿童的照顾者.
- 利用半结构面试和验证问卷来评估家庭生活质量,护理整合和资源利用.
- 采用适应的马斯洛需求层次模型来分析照顾者的影响.
主要成果:
- 缺乏足够的支持对家庭的生活质量产生了负面影响,导致未满足的需求,如照顾者的负担,行为问题,财务压力和心理健康问题.
- 护理人员在一个分散的医疗保健系统中,没有足够的支持来应对护理协调的挑战.
- 在卫生,教育和社会领域发现了大量未满足的需求.
结论:
- 建议实施基于需求的护理协调计划,以适应NDD-MC儿童及其家庭的健康,教育和社会要求.
- 倡导马斯洛的基于层次的支持,以提高管理复杂护理需求的家庭的生活质量.
- 强调综合和以家庭为中心的支持系统的关键作用.
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