父母与临床医生的沟通以及父母长期的悲伤,他们的孩子死于癌症
Na Ouyang1, Justin N Baker2, Prasanna J Ananth3
1Pain Research, Informatics, Multi-Morbidities, and Education (PRIME) Center, School of Nursing, Yale University (N.O., M.T.K., S.L.F.), Orange, Connecticut, USA.
Journal of pain and symptom management
|August 14, 2024
概括
充分的预后信息和为终身护理 (EOL) 的准备显著减少父母在孩子癌症死亡后的长期悲伤. 改善这些领域可能有助于减轻父母在丧亲期间的悲伤症状.
科学领域:
- 儿科瘤学 儿科瘤学
- 悲伤研究 悲伤研究
- 息护理沟通 息护理沟通
背景情况:
- 有效的家长-临床医生沟通对于儿科生命终端 (EOL) 护理至关重要.
- 沟通对父母悲伤经历以及儿童癌症后死亡的影响仍未得到充分研究.
研究的目的:
- 调查父母与临床医生的沟通与父母在孩子癌症死亡后的长期悲伤之间的联系.
- 探索EOL护理的准备是否调解了这种沟通悲伤的关联.
主要方法:
- 来自124名死于癌症 (6-24个月内) 儿童的父母的横截面调查数据.
- 多重线性回归分析了沟通变量和长期悲伤症状.
- 调解分析检查了EOL准备的作用.
主要成果:
- 报告有足够预后信息的父母的长期悲伤得分 (PG-13总分) 显著降低.
- 对于EOL的准备感完全介绍了充分的预后信息和减少悲伤之间的关联.
- 近39%的家长觉得他们没有为孩子的EOL做好准备.
结论:
- 父母在孩子癌症死亡后的早期丧亲中经历了严重的长期悲伤症状.
- 建议加强预后信息和EOL准备的干预措施来缓解父母的悲伤.
- 改进的沟通策略可以支持悲伤的家庭.
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