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适用于所有人的研究伦理:为具有发展障碍的社区研究合作伙伴开发社会行为研究伦理教育计划

Ariel E Schwartz¹, Katherine McDonald²,

¹Institute on Disability, University of New Hampshire, 10 West Edge, Durham, NH, 03824, USA.

Disability and health journal

|August 14, 2024

概括

这项研究为有发展障碍的社区研究合作伙伴创造了可访问的研究伦理培训. "所有人的研究伦理"计划旨在消除障碍,使人们能够更广泛地参与研究.

科学领域:

关于残疾人的研究.
研究伦理学研究伦理学
健康公平卫生公平

背景情况:

难以获得的研究伦理培训阻碍了发展障碍的个人为研究做出贡献.
解决这些障碍对于包容性研究实践至关重要.

研究的目的:

开发一个可访问的社会行为研究伦理学培训计划.
该培训是为具有发展障碍的社区研究合作伙伴量身定制的.
完成后提供认证.

主要方法:

合作开发涉及有发展障碍的人,服务提供商,研究人员和伦理专家.
进行了对与发展障碍成年人进行研究的伦理,法律和社会问题的快速范围审查.
使用修改后的Delphi流程进行内容选择和可访问性指导.

主要成果:

通过审查和合作伙伴的投入,确定了93个潜在的教育内容元素.
合作伙伴为最终培训课程推了83个内容元素.
开发了"研究伦理为所有人",一个5个单元,自由可用的培训,具有教学和积极学习组件.

结论:

"研究伦理为所有人"提供了基础的社会行为研究伦理知识.
该培训旨在赋予发展障碍的社区研究合作伙伴权力.
它支持增加对研究职责的参与.

关键词:

可访问性可访问性基于社区的参与式研究.伦理学伦理学伦理学包容性研究包括包括的研究.智力和发育障碍智力和发育障碍

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