为痴呆症预防研究人员提供实用社交媒体建议
Viorica Hrincu1, Katherine T Roy1, Julie M Robillard1,2
1Division of Neurology Department of Medicine University of British Columbia Vancouver British Columbia Canada.
Alzheimer's & dementia (New York, N. Y.)
|August 15, 2024
概括
研究人员制定了关于在痴呆症预防研究中使用社交媒体的共识建议. 这些指导方针涉及道德考虑,错误信息,耻辱和沟通策略,以加强公众参与.
科学领域:
- 公共卫生 公共卫生
- 沟通研究 沟通研究
- 老年学是指老年学的学科.
背景情况:
- 更多地参与痴呆症预防研究需要实用的社交媒体建议.
- 制定与潜在参与者的价值观一致的共识建议对于指导社交媒体使用至关重要.
研究的目的:
- 制定一套关于在痴呆症预防研究中使用社交媒体的共识建议.
- 确保建议反映了潜在参与者的价值观和优先事项.
主要方法:
- 采用了三轮修改后的Delphi方法,包括在线调查和电话会议.
- 一个多元化的,由16名专家组成的国际小组 (10名有实践经验,6名有专业经验) 参与了会议.
- 共识被定义为小组成员之间70%的同意.
主要成果:
- 达成共识的26个项目涵盖了社交媒体群体和内容共享的伦理考虑.
- 达成共识的关键领域包括管理错误信息 (79%),解决耻辱 (93%) 和沟通策略.
- 15个最终共识项目被分为7个社交媒体使用案例,包括道德参与,错误信息管理和首选语言.
结论:
- 开发的共识建议为痴呆症预防研究人员提供了一个框架,以便有效地利用社交媒体进行公众参与.
- 这些建议有助于维护痴呆症研究和更广泛的社区的规范和价值观.
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