为患有多发性硬化症的人共同设计的在线营养教育计划的可行性
Rebecca D Russell1, Andrea Begley1, Alison Daly1
1Curtin School of Population Health, Curtin University, Perth, Australia.
Multiple sclerosis and related disorders
|August 15, 2024
概括
共同设计的"与多发性硬化症 (MS) 患者健康饮食"计划是一个可行的在线营养教育工具,用于多发性硬化症 (MS) 患者. 它改善了饮食行为和识字能力,显示出强烈的社区接受和参与.
科学领域:
- 营养科学 营养科学
- 公共卫生 公共卫生
- 数字健康数字健康
背景情况:
- 饮食质量对于治疗多发性硬化症 (MS) 至关重要,但在线信息矛盾在患者中造成混乱.
- 患有多发性硬化症的人需要基于证据的,针对多发性硬化症的饮食指导,以促进健康的生活方式的改变.
- 一个异步的,在线营养教育计划",吃好MS",是与MS社区共同设计的.
研究的目的:
- 评估联合设计的"与多发性硬化症患者健康饮食"在线营养教育计划的可行性.
- 评估计划的需求,实用性,可接受性和初步有效性.
主要方法:
- 一个单臂,为期九周的前后可行性试验,涉及已确认多发性硬化症的成年人.
- 可行性结果包括招聘率 (需求),计划完成率 (实用性) 和通过内在动机库存 (可接受性) 的参与者满意度.
- 通过饮食习惯问卷 (DHQ),关键营养素养工具 (CNLT) 和食品素养行为检查清单 (FLBC) 通过治疗意图分析来评估有限的疗效.
主要成果:
- 招募超出了目标,在六周内招募了70名参与者,而目标是48名.
- 至少一个模块的课程完成率为84%,全部五个模块的完成率为54%.
- 参与者报告了高的程序可接受性,中位数的兴趣/乐趣在5/7和价值/有用性在6/7. 在干预后的DHQ,CNLT和FLBC得分中观察到有统计学意义的改善.
结论:
- "与MS健康饮食"计划证明了可行性,得到了MS社区的好评,并有效地改善了饮食行为和营养素养.
- 该研究强调了共同设计方法在为特定患者群体开发有影响力的健康资源方面取得的成功.
- 研究结果支持将共同设计的在线营养教育计划整合到MS护理中,以增强患者的自我管理和福祉.
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