术语学有没有意义? 来自肢体差异患者,临床医生和研究人员的观点
M G Finco1, Cody L McDonald2, Sarah C Moudy3
1Department of Anatomy and Physiology, University of North Texas Health Science Center, Fort Worth, TX.
Archives of physical medicine and rehabilitation
|August 15, 2024
概括
术语偏好在肢体差异的个人和专业人士之间有所不同. 虽然"残余肢体"和"肢体差异的人"是常见的,但背景和个性是适当语言的关键. 截肢被一些人喜欢的人口讨论.
科学领域:
- 康复医学 康复医学 康复医学
- 关于残疾人的研究.
- 卫生沟通健康沟通
背景情况:
- 围绕肢体差异的术语显著影响了患者-提供者沟通和自我认同.
- 了解首选语言对于尊重和有效的医疗保健互动至关重要.
- 现有的研究往往缺乏肢体差异的个人的观点.
研究的目的:
- 识别和比较受影响个人和医疗保健/研究专业人员之间肢体差异的首选术语.
- 探索术语的重要性和对人第一语言与身份第一语言的偏好.
- 为制定以人为中心的语言指导方针提供信息.
主要方法:
- 对122名参与者 (65名肢体差异患者,57名专业人士) 进行了一项横截面的在线调查.
- 参与者是居住在美国的成年人 (≥18岁),具有相关经验或自我识别.
- 该调查评估了术语的重要性,语言偏好 (人第一与身份第一),以及特定的术语选择.
主要成果:
- 大多数参与者被认定为白人;年龄在各组之间差异很大.
- 术语的重要性在两个群体中都很高,特别是专业人士 (70%) 和肢体差异 (50%) 的人.
- 虽然专业人士倾向于以人为首的语言 (73.7%),但肢体不同的人几乎均分 (50.8%以人为首,42.9%以身份为首). "残余肢体"和"肢体差异的个人/人"是最常见的,尽管一些人更喜欢"截肢者"作为人口参考.
结论:
- 两组人都认识到术语的重要性,一般更喜欢"残余肢体"和"肢体差异的个人/人".
- 很大一部分肢体差异的人更喜欢身份第一语言,突出了不同的观点.
- 术语选择应优先考虑个性和背景,未来的研究需要更广泛的人口和病因代表性.
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