经济困难:一项定性研究探讨了重病患者及其家人的观点
Danae G Dotolo1, Christina Clare Pytel2, Elizabeth L Nielsen1
1Cambia Palliative Care Center of Excellence (D.G.D., E.L.N., R.A.E., N.K.), University of Washington, Harborview Medical Center, Seattle, Washington, USA; Department of Medicine, Division of Pulmonary (D.G.D., E.L.N., R.A.E.), Critical Care, & Sleep Medicine, University of Washington, Harborview Medical Center, Seattle, Washington, USA.
Journal of pain and symptom management
|August 15, 2024
概括
严重病患和家人优先考虑生存而不是经济困难,但财务不确定性仍然存在. 他们更喜欢不与医生讨论财务问题.
科学领域:
- 关键护理医学 关键护理医学
- 卫生经济学 卫生经济学
- 患者和家庭为中心的护理.
背景情况:
- 危急疾病往往会给患者和家人带来不良后果,包括经济困难.
- 对于重症患者及其家属的经济困难的具体经历并未得到充分理解.
研究的目的:
- 探索重症患者及其家属的经济困难经历.
- 了解患者和家人的观点,了解在重症期间和之后管理财务问题.
主要方法:
- 半结构面试的专题分析.
- 包括最近住院的15名危急病患者和18名家庭护理人员.
主要成果:
- 三个主要主题出现了:优先考虑生存,生活在不确定性 (长期,官僚,长期的担忧) 和对金融指导的偏好.
- 患者和家人最初将生存优先于财务问题,财务不确定性持续存在.
- 危急病患者和家庭护理人员不愿意与他们的医生讨论经济困难.
结论:
- 关键护理设置为经济困难提供了独特的背景,因为治疗决策的急性和时间敏感性.
- 进一步的研究是必要的,以充分理解这些经验.
- 需要制定情境敏感的干预措施,以缓解经济困难并改善患者和家庭的结果.
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